Historical directory: These links document COVID-19 projects assembled early in the pandemic. Many studies have closed; closed entries are retained as plain text, while links point to current project or archive pages where available.
Registries
- SECURE-IBD: Coronavirus and Inflammatory Bowel Disease (IBD) Reporting Registry
- SECURE-SCD: published registry findings
- COVID19 in Primary Immunodeficiency (PID): Survey for clinicians from the ESID (European Society for Immunodeficiencies)
- COVID-Hep: published international registry findings
- SECURE – Cirrhosis
- PsoProtect: Psoriasis Patient Registry for Outcomes, Therapy and Epidemiology of Covid-19 Infection
- USA Pediatric COVID-19 Registry (PIDTRAN)
- T1D Exchange: published preliminary surveillance findings
- SECURE-AD: Coronavirus & Atopic Dermatitis Reporting Database
- COVID-19 Dermatology Registry
- CURE HIV-COVID Reporting Database (archived; original site no longer available)
- Spondylitis Association of America – COVID-19 and Spondyloarthritis Survey
- American Academy of Dermatology – COVID-19 Dermatology Registry
- Society of Critical Care Medicine (SCCM) – Viral Infection and Respiratory Illness Universal Study (VIRUS)
- intubateCOVID – tracking outcomes of anesthesia providers caring for COVID19 patients
- ECMO in COVID19 Global Registry
- ASH RC COVID-19 Registry for Hematologic Malignancy
- The COVID-19 and Cancer Consortium
- Transthoracic Echocardiography in COVID 19 Registry
- PRIORITY: Pregnancy Coronavirus Outcomes Registry
- The Global Hidradenitis Suppurativa COVID-19 Registry project summary
Patient Surveys
- FORWARD—The National Databank for Rheumatic Diseases COVID-19 Questionnaire for patients
- PsoProtectMe – We are asking everyone around the world with psoriasis, whether or not they have had symptoms of COVID-19, to complete our PsoProtectMe survey