Patient Experience Survey Updates

Patient Experience Survey Summary Data

The COVID-19 Rheumatology Patient Experience Survey is now CLOSED.

We want to thank all of you, our patients, patient organizations, and collaborators, for helping us better understand how the COVID-19 pandemic has impacted you and many around the world living with a rheumatic disease. 

With your participation, we have reached over 108 countries, all 50 US states, accumulating over 14,000 responses in just under 12 months.

Below are two figures showing the geographic distribution of the responses (darker colors represent more responses).

These survey responses are integral to inform healthcare providers about the day to day quality of life for patients with rheumatic diseases during this pandemic. Your insights will inevitably help to foster improved communication of disease severity, concerns, and fears between patients and their healthcare providers to enhance their quality of care.

The following are some of the notable publications/editorials/accomplishments that have come out of this patient experience survey:


Publications and editorials regarding the survey development:

Comprehensive plain language summaries organized by the GRA patient board and patient partners to help translate the GRA research findings into lay terms. With more to come!

Media coverage:

We will be pushing out more publications and lay summaries of the data collected from the survey responses outlining characteristics and analysis in the coming months. We could not have reached this milestone without your collective effort. We are committed to sharing with you the research that you have helped us collect!

The GRA will continue to support the rheumatologic community dialogue, with a view to enhancing trust and cooperation!