Establishing The COVID–19 Global Rheumatology Alliance Steering Committee:
The steering committee is composed of academic and community rheumatologists and a patient representative. The steering committee was formed with the goal of rapidly curating and disseminating accurate, timely, evidence-based information to the community of rheumatology providers and patients.
Please note that we are a very early stage, grassroots organization (established March 12, 2020) that was rapidly formed in response to the global COVID–19 pandemic. Listed below is the initial Steering Committee. Representation based on gender, geographic location, and ethnic diversity is very important to our group, and will be an important focus as we continue to grow and evolve.
Current Steering Committee:
Philip Robinson, MBChB, PhD, FRACP, MAICD (@philipcrobinson)
Chair, Governance, Policy
Dr. Philip Robinson is a clinical and academic rheumatologist at the Royal Brisbane Hospital, in Queensland, Australia and associate professor at the Faculty of Medicine at The University of Queensland.
Jinoos Yazdany, M.D., MPH (@JYazdanyMD)
Vice-Chair, Real-world Data Infrastructure, Registry and IRB/Ethics
Dr. Jinoos Yazdany is Chief of the Division of Rheumatology at Zuckerberg San Francisco General Hospital (ZSFG) and the Alice Betts Endowed Professor of Medicine at the University of California, San Francisco (UCSF). She practices rheumatology at ZSFG and co-directs the Lupus Clinic at UCSF Health.
Paul Sufka, M.D. (@psufka)
Technology and Marketing Lead
Dr. Paul Sufka is department chair and practices rheumatology with HealthPartners medical group in St. Paul, MN. He is also the social media editor for Arthritis & Rheumatology, Arthritis Care & Research, and ACR Open Rheumatology.
Rebecca Grainger, MBChB (Dstn), BMedSci (Dstn) MIsntD, CHIA, FRACP, FACHI, PhD (@Drbeckyg)
Literature Review Co-Lead
Dr. Rebecca Grainger is a clinical and academic rheumatologist in New Zealand, working in public hospital practice [Hutt VAlled DHB]. She is an Associate Professor in the Department of Medicine and Department of Pathology and Molecular Medicine at the University of Otago in New Zealand.
Zach Wallace, M.D., MSc (@zach_wallace_md)
Literature Review Co-Lead
Dr. Zachary Wallace is a rheumatologist and researcher in the Rheumatology Unit and Clinical Epidemiology Program at Massachusetts General Hospital. He is an Assistant Professor of Medicine at Harvard Medical School.
Suleman Bhana, M.D., FACR (@DrBhana)
Organizational Liaison and Media
Dr. Suleman Bhana is a clinical Rheumatologist in a multi-specialty group private practice in New York. He is chair of the Communications and Marketing Committee of the American College of Rheumatology, a co-found of the #RheumJC twitter based journal club, and former co-host of The Rheumatology Podcast.
Emily Sirotich (@emilysirotich)
Patient Engagement Co-Lead
Emily Sirotich is a patient partner, board member of the Canadian Arthritis Patient Alliance, and PhD student in Health Research Methodology at McMaster University.
Jean Liew, M. D, (@rheum_cat)
Dr. Jean Liew is a rheumatology fellow at the University of Washington in Seattle, WA, where she performs clinical research.
Jonathan Hausmann, M.D. (@hausmannMD)
Patient Registries Collaboration Lead
Jonathan S. Hausmann is a pediatric and adult rheumatologist at Boston Children’s Hospital and Beth Israel Deaconess Medical Center at Harvard Medical School.
Pedro Machado, M.D. (@pedrommcmachado)
Dr. Pedro Machado is an Associate Professor & Consultant Rheumatologist at University College London (UCL). He leads a myositis clinic at University College London Hospitals (UCLH) and an axial spondyloarthritis clinic at Northwick Park Hospital. He is the Chair of the EULAR Standing Committee on Epidemiology and Health Services Research (SCEHSR) and a member of the EULAR Executive Committee.
Patient Engagement Co-Lead
Wendy Costello is a mum to Niamh who was diagnosed at the age of 3 with Juvenile Idiopathic Arthritis. She is the co-founder and chairperson of the Irish Children’s Arthritis Network (iCAN) in 2013, which is a volunteer charity that supports children and young people living with paediatric rheumatic diseases. She is also the current Chair of the European Network of Children with Arthritis (ENCA), sits on the board of the Paediatric Rheumatology European Society council, and is chair of the steering committee of the University College Dublin Centre of Arthritis Research.
Australia: David Liew
Austria: Paul Studenic
Brazil: Claudia Marques
Canada: Diane LaCaille, Sindhu Johnson, Keshini Devakandan, Carter Thorne
China: Mengtao Li
France: Francis Berenbaum
Germany: Johannes Knitza, Peter Korsten
Ireland: Richard Conway
Japan: Mari Kihara
Latvia: Bulina Inita
Mexico: Erick Adrian Zamora Tehozol
New Zealand: Rebecca Grainger
Peru: Manuel Ugarte-Gil
Saudi Arabia: Ibrahim Almaghlouth
South Africa: Kate Webb, Kavita Makan
UK: Taryn Youngstein, Pedro Machado, Richard Beesley, Kimme Hyrich
USA: Adam Kilian, Maria Danila, Isabelle Amigues, Eugenia Chock, Michael Putman, Laura Lewandowski, Jon Hausmann, Maximilian Konig, Beth Wallace, Reema Syed, Sebastian Sattui, Arundathi Jayatilleke, Jean Liew, Namrata Singh, Aarat Patel, Katherine Wysham, Alí Duarte, Marc Nolan, Jeffrey Sparks
About our current collaboration with the American College of Rheumatology (ACR):
To facilitate our ability to quickly address the challenges facing rheumatology in the context of this pandemic, we are pursuing a collaboration with the American College of Rheumatology (ACR) to support our initial development as an organization. This arrangement will allow us to leverage the rich resources and support of the ACR so that we can ultimately form an independent organization. As we develop “in-house” expertise in such topics as regulatory compliance, finance, and grant management, the ACR can help us meet our obligations and responsibilities to the community that The COVID-19 Global Rheumatology Alliance serves. Both The COVID-19 Global Rheumatology Alliance and ACR agree that the ultimate goal is for The COVID-19 Global Rheumatology Alliance to be an independent organization pursuing its mission.
Our mission is to create a secure, de-identified, international case reporting registry and curate and disseminate the outputs from that registry. It is our hope that the information collected will help guide rheumatology clinicians in assessing and treating patients with rheumatologic disease and in evaluating the risk of infection in patients on immunosuppression.
Our data sharing agreement with other groups and organizations:
We established The COVID–19 Global Rheumatology Alliance’s registries during the time of a global crisis, for the betterment of all people. Our goal is to provide an open platform for data collection, sharing, and dissemination which is transparent, inclusive, and non-competitive in the most democratic and responsible ways possible.
In partnering with The COVID–19 Global Rheumatology Alliance, you agree to share collective data with the above purpose in mind. In return, you will receive access to the collected data that is to be used for the betterment of society. Any data-sharing agreements are subject to institutional review board approval.