Skip to content

The COVID-19 Global Rheumatology Alliance

The Global Rheumatology Community's response to the worldwide COVID-19 Pandemic

  • Home
  • Active Projects
    • New COVID-19 Pediatric Survey!
    • Provider Registries
  • Our Data & Publications
    • Publications by The COVID-19 Global Rheumatology Alliance
    • Plain Language Summaries
    • Provider-Entered Registry Data
    • Patient Experience Survey Data
    • Map of data from the Provider-Entered Registries
    • #ACR20 Convergence
  • About
  • For Patients
    • Take the 2023 COVID-19 GRA Pediatric Survey!
      • Communications Toolkit
    • Plain Language Summaries
    • Meet the Patient Board
  • Resources
    • Communications Toolkit
    • Similar Registries, Surveys, and COVID-19 trials
    • For Patient Organizations
    • Printable Flier
  • Corporate Supporters

IRB and Protocol

Below are links to the information that should help most everyone in the world determine if an IRB is required at their institution. If you have questions, please email us at rheum.covid@gmail.com.

  • Frequently Asked Questions (FAQ) Regarding IRB Approval for Rheum-Covid Registry Participation
  • The Rheum-Covid Registry Study Protocol. (Download as Word document)
  • PDF of our UCSF IRB approval letter

Connect With Us

Email us: rheum.covid@gmail.com
Subscribe: Join our mailing list
Interested in volunteering? Email us
Twitter: @rheum_covid
Facebook: @rheumcovid
Instagram: @rheum_covid
Click here for ‘Plain Language Summaries’ of our data

Official Supporters

  • American College of Rheumatology (ACR)
  • European League Against Rheumatism (EULAR)
  • International League of Associations for Rheumatology (ILAR)
  • British Society for Rheumatology
  • Canadian Rheumatology Association (CRA)
  • The Pan American League of Associations of Rheumatology (PANLAR)
  • APLAR
  • Sociedade Brasileira de Reumatologia (SBR)
  • Canadian Arthritis Patient Alliance
  • New Zealand Rheumatology Association (NZRA)
  • CreakyJoints & The Global Healthy Living Foundation (GHLF)
  • South African Rheumatism & Arthritis Association (SARAA)
  • Mexican College of Rheumatology
  • Lupus Research Alliance
  • Irish Society of Rheumatology (ISR)
  • Autoinflammatory Alliance
  • Vasculitis Foundation
  • Lupus Foundation of America
  • Association of Women in Rheumatology
  • Sociedad Paraguaya de Reumatología
  • Chronic Recurrent Multifocal Osteomyelitis (CRMO) Foundation
  • System Juvenile Idiopathic Arthritis (SJIA) foundation
  • Systemic Juvenile Idiopathic Arthritis (SJIA) Parents Network
  • Arthritis Kids South Africa
  • Nature Reviews Rheumatology
  • Philippine Rheumatology Association
  • Sjögren Europe
  • Arthritis & Rheumatology
  • Arthritis Care & Research
  • ACR Open Rheumatology
  • Rare Autoinflammatory Conditions Community - UK (RACC-UK)
  • Healio Rheumatology
  • The Lancet Rheumatology
  • Autoinflammatory UK
  • Arthritis Foundation
  • United Rheumatology
  • NLRP12
  • The Journal of Rheumatology
  • International Foundation for Autoimmune & Autoinflammatory Arthritis
  • National Rheumatoid Arthritis Society (NRAS)
  • FORWARD: The National Databank for Rheumatic Diseases
  • The Nebraska Rheumatology Society
  • The Australian Rheumatology Association (ARA)
  • AGORA
  • Spondylitis Association of America
  • Canadian Rheumatology Association
  • Irish Children's Arthritis Network (iCAN)
  • European Network for Children with Arthritis and Auto-inflammatory diseases (ENCA)
  • Turkish Society for Rheumatology
  • Netherlands Component to European Network for Children with Arthritis and Auto-inflammatory diseases (KAISZ)
  • Arthritis Consumer Experts
  • Childhood Arthritis and Rheumatology Research Alliance (CARRA)
  • National Organization of Rheumatology Managers (NORM)
  • French Society of Rheumatology (SFR)
  • Juvenile Arthritis Research
  • Childrens Chronic Arthritis Association (CCAA)
  • Australasian Society of Clinical Immunology and Allergy (ASCIA)
  • The Myositis Association
  • Arthritis Consumer Experts
  • The Hibbs Lupus Trust
  • Italian Society for Rheumatology (SIR)
  • Czech Society of Rheumatology
  • Seminars in Arthritis and Rheumatism
  • Deutsche Gesellschaft für Rheumatologie e.V
  • Lupus Foundation of America
  • Scottish Network for Arthritis in Children (SNAC)
  • Women with Rheumatoid Disease
  • Lupus UK
  • Odense University Hospital
  • Saudi Society of Rheumatology
  • Charitable Association for Rheumatic Diseases
  • Loma Linda University
  • Wynn Medical Center
  • Rheumazentrum Lübeck
  • Westboro Rheumatology Clinic
  • Elim Rheumatic Centre
  • Coast Joint Care
  • Toho University School of Medicine
  • Royal Children’s Hospital Melborne
  • Rheumatoid Patient Foundation
  • Northwestern Feinberg School of Medicine
  • Club Rhumatismes et Inflammations (CRI)
  • Arthritis Life
  • Rheumatology In Advance
  • Articularis Healthcare
  • University of British Columbia
  • HealthPartners Rheumatology
  • Aga Khan University Hospital Karachi Pakistan
  • University of TORONTO - UHN
  • HighRiskCovid19
  • Arab Adult Arthritis Awareness Group (AAAA)
  • Honduran Society of Rheumatology
  • Canadian Early Arthritis Cohort (CATCH)
  • Lupus Foundation of Bangladesh
  • Dept of Rheumatology, Karolinska University Hospital, Stockholm, Sweden
  • Russian Rheumatology Association "Nadegda"
  • West Suburban Center for Arthritis
  • Rheumatology Journal Club on Twitter (#RheumJC)
  • Coalition of State Rheumatology Organizations
  • Osteoarthritis Action Alliance
  • Multiple Autoimmune Syndrome Group
  • Axial Spondyloarthritis International Federation (ASIF)
  • Sociedad Venezolanade Reumatología
  • Actionrecovery
  • Eric’s Journey Foundation
  • Emirates Society for Rheumatology
  • UNC Thurston Arthritis Research Center
  • Arthritis and Rheumatology Associates of Palm Beach
  • Collegio Reumatologi Italiani (CReI)
  • Greek Rheumatology Society
  • Lupus and Allied Diseases Association, Inc.
  • American Autoimmune Related Disease Association
  • Scleroderma Clinical Trials Consortium
  • Institute for Rheumatic & Autoimmune Diseases/Atlantic Health System
  • Cleveland Clinic Department of Rheumatology
  • Boice Willis Clinic
  • Hospital Clínico Viedma
  • LA Lupus Lady
  • Satanatorio Modelo de Morón
  • Annals of the Rheumatic Diseases (ARD).
  • American Association for Pediatric Ophthalmology and Strabismus (AAPOS)
  • University Hospital Waterford
  • Systemic Lupus International Collaborating Clinics (SLICC)
  • MedStar Washington Hospital canter
  • Cyprus Rheumatology Association
  • University of Oklahoma HSC
  • Paediatric Global MSK Task Force
  • KAISZ
  • GIR-INIBIC
  • EMG-Health
  • Rheumatology Unit, ASST-Fatebenefratelli L. Sacco University Hospital, University of Milan, Italy
  • Beyond Rheumatology (Journal)
  • Mumbai Arthritis Clinic
  • Sjögren’s Foundation
  • Austrian Society for Rheumatology and Rehabilitation
  • Norwegian Society for Rheumatology
  • Medicine Matters Rheumatology
  • Qatar Rheumatology Association
  • Lupus Foundation New England
  • LupusChat
  • Wisconsin Rheumatology Association
  • Looms For Lupus
  • ArthritisPower
  • Latvia Adult Society of Rheumatology
  • American Behcet’s Disease Association (ABDA)
  • Nigeria Rheumatology Society
  • Centro de Reumatología de El Salvador
  • Kuwait Association of Rheumatology (KAR)
  • Lebanese Society of Rheumatology
  • Rheumatology Alliance of Louisiana
  • Division of Allergy, Immunology, and Rheumatology, Bhumibol Adulyadej Hospital
  • Chronic Eileen
  • Arthritis Ireland
  • RheumNow
  • FUNDARVI
  • RA Guy Foundation
  • Jordanian Society of Rheumatology
  • Arab League of Associations for Rheumatology
  • University of Colorado
  • Kartal Dr. Lutfi Kirdar Training Research Hospital
  • Rheumatology Consultant
  • Asociacion Guatemalteca de Reumatologia
  • Tokyo Medical and Dental University
  • Caribbean Association for Rheumatology
  • Rheumatology Nurses Society
  • American Uveitis Society
  • Spanish Society of Rheumatology
  • Society for Osteoarthritis Research (SOAR)
  • Albanian Society of Rheumatic Diseases
  • Laikon General Hospital, Athens, Greece
  • CEADE
  • Association des Rhumatologues Algériens Privés (ARAP)
  • Associazione Nazionale Persone con Malattie Reumatologiche e Rare - APMARR APS
  • AEEF Asoc. de Enfermos de Espondilitis de Fuenlabrada
  • Metropolitan Atlanta Rheumatology Society
  • FMF & AID Global Association
  • Johns Hopkins Rheumatology
  • The Pioneer Valley Lupus Support Group
  • Indian Rheumatology Association
  • National Axial Spondyloarthritis Society (NASS)
  • Coordinadora Nacional de Artritis
  • Georgia Society of Rheumatology
  • Association of Rheumatic Patients for Targeted Therapy
  • Parents and Caregivers Association of Children with Chronic Rheumatic Diseases
  • UCLA Division of Rheumatology
  • Institut Ferran de Reumatologia
  • Hospital Sanitas CIMA, Barcelona, Spain
  • Sociedad Chilena de Reumatología (SOCHIRE)
  • Rheumatologie im Struenseehaus
  • Health Sciences University of Mongolia
  • Orthopaedic Associates
  • Clinical Rheumatology: Journal of the International League of Associations for Rheumatology
  • Arthritis Research & Therapy
  • Vasculitis UK
  • Mongolia-Japan Teaching Hospital
  • The Gout, Hyperuricemia and Crystal-Associated Disease Network
  • International Foundation for Autoimmune and Autoinflammatory Arthritis
  • Sakthi Rheumatology Centre
  • Egyptian Society of Rheumatic diseases
  • Egyptian Rheumatologist
  • Croatian Society for Rheumatology
  • Myositis Support And Understanding Association
  • Corporación Ayuda al niño con Artritis Juvenil Chile - ANACROJ
  • Reumatologia
  • Sociedad Ecuatoriana de Reumatologia
  • Medstar Georgetown University Hospital
  • Indian Journal of Rheumatology
  • Oman Society of Rheumatology (OSR)
  • Spondylitis Association of Norway (Spondyloartrittforbundet Norge)
  • Moroccan Society of Rheumatology (SMR)
  • Fundación Espondilitis Chile
  • Clinica de Investigacion en Reumatologia y Obesidad
  • Canadian Spondylitis Association
  • Ontario Rheumatology Association
  • Pediatric Rheumatology European Society - PReS
  • Rheumatology International
  • Versus Arthritis
  • Behçet’s UK
  • Department of Paediatrics, Bangabandhu Sheihk Mujib Medical University
  • Arthritis Society
  • Lupus Lights New England
  • Fundación Me Muevo
  • Relapsing Polychondritis Foundation
  • Israeli Society of Rheumatology
  • Grupo Latino-Americano de Estudio del Lupus (GLADEL)
  • Lupus y Aij Caminando juntos AC
  • Lupus Potosino A.C.
  • Asociación Lupus Argentina - ALUA
  • Asociación Civil Artritis en Argentina (ACAEA)
  • Asociación Costarricense Artríticos (ACA)
  • Artritis Alianza Federal
  • Vasculitis Awarness Ireland
  • Asociación de Fiebre Mediterránea Familiar de Argentina (Pacientes y Familia)
  • Grupo EncontrAR - Grupar Brasil
  • Reumatologia y Enfermedades Oseas
  • Fundación yanye y still venezuela
  • Seguro Social Almenara
  • MCTD Foundation
  • Asociación Colombiana de Reumatología
  • Fundación Artritis Idiopática Juvenil Argentina
  • EscleroSalud Asociación Civil de Esclerodermia y Raynaud (en trámite)
  • Coalition of State Rheumatology Organizations
  • Alianza Federal
  • Grupo Amar La Plata
  • Lupus Society of Illinois
  • Canna-Patient Resource Connection
  • Osteoarthritis and Cartilage Journal
  • Galician Rheumatological League
  • Fundación LICAR Liga del Caribe contra la Artritis y el Reumatismo
  • Scleroderma Society of Ontario
  • Purple Playas Foundation
  • Agrupación Lupus Chile
  • APPARA - Asociación Paraguaya de Personas con Artritis Reumatoidea y Afines
  • Egyptian College of Rheumatology (ECR)
  • Henoch Schonlein Purpura Support
  • Norwegian Rheumatism Association
  • Zoe's Angels Inc.
  • Asociación Colombiana de Reumatología
  • Santa Catalina Rheumatology Argentina
  • Florida Society of Rheumatology
  • APS Foundation of America, Inc
  • AMAR San Juan, dependiente de Alianza Federal
  • Sociedade Portuguesa de Reumatologia
  • Polish Society for Rheumatology
  • Santa Catalina Reumatología
  • CLAIR, asbl
  • Preferred Orthopedics
  • Sarasota Arthritis Center
  • Amar Caba asociacion civil en Argentina
  • University of Cyprus Medical School
  • Integral Rheumatology & Immunology Specialists
  • Fondation ARTHRITIS
  • Arthritis & Osteoporosis treatment center PA
  • Centre for Rheumatic Diseases Pune India
  • Mission Arthritis India
  • American Behcet’s Disease Association (ABDA)
  • Association Remisija
  • La maison des polypotes
  • Bangladesh Rheumatology Society
  • TheLupusRainbow
  • Asociación Española Síndrome Antifosfolipídico
  • Swedish Society of Rheumatology
  • Asociación Costarricense de Personas con Enfermedades Reumatologicas
  • Centre for Arthritis & Rheumatic Disease, Ireland
  • Arthritis Center
  • Psoriasis and Psoriatic Arthritis Alliance
  • Fundacion Lupus Cordoba
  • Rheumatology and Autoimmune Center
  • Rheumatology Department, Hospital Clinic, Barcelona
  • Invisible International
  • AFGS (Association Française du Gougerot-Sjögren)
  • Swati Polyclinics
  • Middle East Rheumatoid Arthriris Consortium (MERAC)
  • Steffens Scleroderma Foundation
  • Mifrakim Tz'eirim - Israel
  • Sociedad Argentina de Reumatología (SAR)
  • The Broken Traveller Autoimmune Health & Chronic Illness Travel
  • Mayo Clinic Health System
  • Hospital Universitari i Politècnic La Fe
  • Advanced Academic Rheumatology Review Course - Dubai
  • Lewisham & Greenwich NHS Trust, London U.K
  • Sjogren's Society of Canada
  • Sticky Blood
  • Asociación Lupus Perú y Enfermedades Asociadas
  • The Annual Rheumatology Orthopedic Meeting (AROM) Egypt Registry
  • Lupus Foundation of Northern California
  • Sociedad de Reumatología de la Comunidad de Madrid
  • Romanian Society of Rheumatology
  • Your Autoimmunity Connection
  • Bulgarian Rheumatology Society
  • Korean College of Rheumatology (KCR)
  • RheumaTalk: The RHEUMATOLOGY group
  • Croatian League Against Rheumatism
  • Sarasota Arthritis Center
  • Golestan Rheumatology Research Center
  • Pakistan society for Rheumatology (PSR)
  • Sanatorio San Carlos (Bariloche)
  • BioReg (Association for the Austrian registry for Biologicals, Biosimilars and tsDMARDS in the treatment of inflammatory rheumatic diseases (BioReg)
  • Asociación Una sonrisa al dolor
  • Scleroderma Society of the Philippines
  • sclerodermie.ch/
  • The More Than Lupus Foundation
  • The M.D. Strazhesko Institute of Cardiology National Academy of Medical Sciences of Ukraine
  • Carolina Arthritis Associates
  • NYU Langone Health - Division of Rheumatology
  • Fundación Colombiana de Apoyo al Reumático
  • Instituto de Reumatología, Hematología y Dermatología (IRHED)
  • Multifield Medical centre,Odessa Medical University
  • The Labalaba Foundation
  • Artritis Alianza Federal
  • AMAR-Posadas
  • Association Physicians of Osteoporosis of the Republic of Kazakhstan
  • Pakistan Society for Rheumatology(PSR)
  • Sociedad Bolivana de Reumatología
  • Everyday Health
  • Oyemam Autoimmune Foundation
  • Community Care Rheumatology
  • Pakistan society for Rheumatology (PSR)
  • Hong Kong Society of Rheumatology
  • Lupus Foundation of South Africa
  • Healing Touch City Clinic - India
  • Una Sonrisa al Dolor AC
  • Spanish Society of Rheumatology
  • Cape Fear Arthritis Care
  • Association of Rheumatic Patients for Targeted Therapy
  • Carolina East
  • Aarskog Foundation
  • Spanish Association for Antiphospholipid Syndrome (SAF España)
  • Lupus Canada
  • Ankylosing Spondylitis - Malaysia
  • Foundation for Sarcoidosis Research
  • Mindful Rheumatix and Medical Research Group
  • Fundacion Puertorriqueña de Enfermedades Ruematicas (Fundacion FER)
  • Foundation for Sarcoidosis Research
  • Lupus Europe
  • Liga Portuguesa Contra as Doenças Reumáticas
  • Scleroderma India
  • Scleroderma Manitoba
  • French RA Patients Association (AFPric)
  • Scleroderma Research Foundation
  • INBAR - Israeli RA founadation
  • Canadian Arthritis Patient Alliance
  • Myositis Association - Australia Inc
  • Unidade de Reumatologia do Hospital Central de Maputo
  • Mansoura University
  • Pediatric Rheumatology Association of Japan (PRAJ)
  • The Italian Pediatric Rheumatology Society

Proudly powered by WordPress